Thanks to research and medical progress, many of these children can now live both healthy and long lives.
During the summer, Bridget Robinson says she spends every Saturday's racing go-kart.
It can be hard to believe that when you consider the 12-year-old Hamlin girl was born with a congenital heart failure and her mother had no idea what her future would be.
"It's called hypo-plastic left heart syndrome," Bridget said. "It's also called HLHS, which means I only have the left side of my heart."
Bridget is doing well. But it has been a difficult journey from the start.
"She turned blue," said her mother, Chelsey Robinson. "She really didn't cry so much, [she was] slept more than a newborn would sleep, and she didn't eat."
Chelsey Robinson remembers learning her newborn suffers from a congenital heart failure.
"You feel cheated," she said. "You don't know if you should bring your child home."
Bridget has had three open heart surgery, and last summer, doctors introduced a pacemaker.
"Just because I have a scar, doesn't mean I'm not a normal child," Bridget said. "I may not do things like other children, but I'm still a normal child."
Both mother and daughter hope their story inspires and raises awareness of congenital heart failure.
"No matter who you are, you probably know someone with CHD or it's just an adult with heart problems," she said. Robinson. "Research and funding is needed for young and old."