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Man with ALS fights to find a cure



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Updated: 4:34 PM CDT May 28, 2019

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Noel Lavasseur is working hard to help find a treatment for ALS for the next generation. Lavasseur was diagnosed with ALS, also known as Lou Gehrig's disease, in 2017, just a year after he married his wife, Jen. The disease slowly destroys muscle control and currently there is no cure. He can no longer work at his masonry job, so instead, Lavasseur has become an outspoken advocate for ALS awareness. "I was willing to fight for it, where there are others who get that awful diagnosis that makes them want to just curl up and just go in a corner, that's not my style," Lavasseur said.He has lobbied at the state house in Maine and on Capitol Hill in Washington DC, and with support from several members of Congress, he'll be back in Washington soon as part of a nationwide effort to find money for fund research. "We're trying to hit all 50 states at once through the ALS community." The ALS association recognized him as a national hero recently, where Lavasseur joked, "I'm a Red Sox so anything to do with the Yankees I automatically hate, so this Lou Gehrig thing wasn't a good match from the get-go. ”Lavasseur is realistic about his own fate, but his work can help finally beat this disease for good. "The reality is I'm going to be just another statistic eventually but maybe I can help, so the generation behind me might have that cure or treatment that allows them extra time with their families."

Noel Lavasseur is working hard to help find a cure or treatment for ALS for the next generation. Lavasseur was diagnosed with ALS, also known as Lou Gehrig's disease, in 201

7, just a year after he married his wife, Jen.

The disease slowly destroys muscle control and currently there is no cure.

He is no longer working at his masonry job, so instead, Lavasseur has become an outspoken advocate for ALS awareness.

"I was willing to fight for it, where there are others who get that awful diagnosis that makes them want to just curl up and just go in a corner, that's not my style," Lavasseur said.

He has at the state house in Maine and on Capitol Hill in Washington DC, and with the support of several members of Congress, he'll be back in Washington soon as part of a nationwide effort to find money for fund research.

"We're trying to hit all 50 states at once through the ALS community."

The ALS association recognized him as a national hero recently, where Lavasseur joked, "I'm a Red Sox Fan so anything to do with the Yankees I automatically hate, so this Lou Gehrig thing wasn't a good match from the get-go. ”

Lavasseur is realistic about his own fate, but his work may help finally beat this disease for good .

"The reality is I'm going to be just another statistic eventually but maybe I can help, so the generation behind me might have that treatment that allows them extra time with their families."


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